GPQ Programs

General Practice Queensland

Together we can build a better health system

Self-Management

Overview

Self-management has been identified as one of the key system enablers to progress the Queensland Strategy for Chronic Disease and has been described in the strategy document as: ‘Empowering and preparing individuals to manage their health and health care’

Self-management is similarly seen as a priority for almost every call for primary health care reform in Australia.  The Australian National Chronic Disease Strategy identifies self-management as one of four key action areas. The Australian Better Health Initiative has recognised ‘encouraging active patient self-management’ as a priority area and has expressed a commitment to provision of targeted training, education and resources to strengthen the capacity of the existing and future primary care workforce to support chronic disease self-management. 

Self-management has also been highlighted in the literature as an important strategy for managing chronic illness. Research findings however identify that the concept of self-management has been perceived as different things by different people and consequently led to a diverse array of practices considered to be representative of self-management.

The chronic disease team via representation on relevant peak bodies and in consultation with other key stakeholder groups is exploring existing frameworks and evidence based approaches to support self-management in practice. In identifying suitable support mechanisms for Divisions to implement evidenced-based self-management approaches in practice, the Chronic Disease team seeks to promote integration of self-management principles and ultimately improve health outcomes for all Queenslanders.

Objectives

As articulated in the Queensland Strategy for Chronic Disease 2005 – 2015 empowering and preparing individuals to manage their health and healthcare can be translated into the following core objectives:
  • Develop resource and implement a framework for self-management to support consistent approaches and access for all Queenslanders with, or at risk of developing chronic disease.
  • Identify or, where required, develop models that support the needs of specific population groups including Aboriginal and Torres Strait Islander peoples, people from culturally diverse backgrounds and people form rural and remote areas.
  • Identify appropriate models and develop toolkits to support delivery of self-management programs including ongoing support for individuals to increase self efficacy and coping strategies.
  • Develop and implement awareness-raising and training programs for health professionals and peer-leaders around self-management.

When applying these objectives, General Practice Queensland (GPQ) seeks to implement strategies which build the capacity of the primary care setting to support the broad adoption of self-management principles into practice.  These strategies include:
  • Promoting the role of the practitioner in chronic disease self-management.
  • Developing the understanding and awareness of what self-management means in a primary care setting.
  • Provide representation on and support to stakeholder networks for chronic disease self-management in Queensland, with a particular focus on primary care.
  • Develop linkages and support the integration of chronic disease self-management activities across other primary health care initiatives.
  • Increase the capacity and skills of general practice (through divisions) and CHAG to undertake evidence based chronic disease self-management support.  This will include the provision of suitable tools, workshops and training.

Program Detail

To support information sharing and collaboration across the Queensland divisions network and with other key stakeholders in the implementation of state and national priorities for chronic disease self-management, GPQ has active representation on the following networks:

Queensland Self-Management Alliance (QSMA)

The Queensland Self-Management Alliance (QSMA) is a coalition of organisations committed to the promotion and support of self-management in Queensland. 

QSMA’s
purpose is to promote the integration and normalisation of self-management philosophy and practices within new and existing services and systems.

Established in April 2005, QSMA received funding from Queensland Health in 2006 to become the peak body for self-management in Queensland.

QSMA comprises representatives from various peak bodies including: Aboriginal and Torres Strait Islander people, culturally and linguistically diverse populations, key service delivery providers and non government organisations and various self-management academic experts.  QSMA has also established links with key national and international self-management experts, ensuring that Queensland is well positioned to benefit from and contribute to, the growing evidence base of self- management.

The Management Advisory Group (MAG) of QSMA was formally elected in October 2007 and is the executive governing committee for QSMA.  GPQ has an elected representative member on the MAG which convenes monthly to progress key objectives and specific activities.

Chronic Disease Self-Management (CDSM) Support Network

The AGPN/SBO Chronic Disease Self-Management Support Network project was commissioned to address the Australian Better Health Initiative’s priority of  "Encouraging active patient self-management of chronic disease"

The project funding commenced in July 2008 and will finish on 30 June 2010. 

The ABHI self-management component aims to integrate the principles of chronic disease self-management and self-management support into the primary health care system, through the provision of education and resources to the existing and future workforce.

Network Aims

  • Provide the Divisions Network with a stronger focus on chronic disease self-management and  support including prevention;
  • Provide opportunities for discussion and promotion of CDSM and support; and
  • Promote linkages to primary care programs and other ABHI initiatives, state and territory governments and consumer groups.


Members of the Network and their role

AGPN

  • Provide national leadership to the divisions Network;
  • Establish mechanisms to ensure effective engagement of allied health, nursing, consumer and carers’ national organisations and other NGOs in activities occurring through the divisions Network;
  • Work in collaboration with the SBOs to support dissemination of information and resources throughout the divisions Network; and
  • Encourage and support sharing of information and dissemination of best practice.


SBOs

  • Provide leadership to the divisions Network in their state/territory;
  • Build on existing relationships with state/territory Health Departments to enhance linkages between the divisions Network and State/Territory funded CDSM programs and initiatives; and
  • Develop and disseminate information about ways of building practice capacity for CDSM drawing on key research.

Planned Activities for 2009

National

  • Definition of the term and the potential scope within general practice.
  • Mapping self-management activities across the divisions Network.
  • Promoting best practice models and strategies to implement within business.
  • Develop a strategy to integrate CDSM initiatives with other divisional programs including ABHI.
State
  • State wide and regional workshops to disseminate learning and facilitate collaboration between local health providers.
  • Development of web based information on self-management research and best practice.

Achievements


Queensland Self-Management Alliance (QSMA)
January 2009 – June 2009
QSMA website: Updated and offers a more dynamic and interactive site to support an individual’s self-management journey.  The improved website links to the latest information, evidence, education, training, funding, resources, tools and partnership opportunities.  New features of the QSMA website also include links to current QSMA member organisations websites and a search engine to facilitate rapid access to specific information users may be seeking.
Chronic Disease Self-Management Forum: Improving Care in Queensland’: GPQ in collaboration with the Queensland Self-Management Alliance (QSMA) hosted the forum at Brisbane City Hall Monday 15 to Tuesday 16 June 2009.  For more information and presentations from the forum, see below.
Critical Issues Paper: QSMA continues to progress development of a critical issues paper to articulate key messages that evolved from sessions with Dr Connie Sixta (international self-management change expert) and the CDSM International Congress in Melbourne last year.  In addition to informing QSMA’s actions for 2009-2010, this paper is intended to provide clear direction in regards to the key issues that need to be addressed to support the effective progression of self-management in Queensland.
July 2008 – December 2008
Consultation with Queensland Health: On 8 September 2008 QSMA completed a 3 month consultation with Queensland Health’s Chronic Disease Strategy Implementation Team.  This process was established to provide an opportunity for QSMA to input into the development of an implementation plan consistent with the Queensland Framework for Self-Management 2008-2015. Key areas of discussion broadly encompassed education and communication and models to support diverse communities.
Earlier in 2008, 6 NGOs received self-management funds under the Queensland Chronic Disease Strategy to support the development of their organisational capacity.  A workshop for the 6 member organisations (Heart Foundation; The Australian Lung Foundation; The Asthma Foundation; Kidney Support Network; and Stroke Association of Queensland) of Queensland; Diabetes Australia Queensland; was hosted by QSMA in September 2008 The key purpose of this workshop was to provide an opportunity for participants to share key achievements and acknowledge challenges and gaps identified to date.  Workshop discussions also explored ways in which QSMA could support the NGOs to enhance respective project outcomes.  Feedback provided from the six NGOs has been used to inform future objectives and targeted activity of the ‘Communications’ and ‘Members Needs’ work groups.    
QSMA elections: The annual elections for the QSMA Management Advisory Group took place in November with three of the six MAG positions being vacated to allow for new nominations.  Congratulations to Glenys Webby and Claire Guilfoyle who were both re-elected to preside on the MAG and welcome to Sue Graham from Spiritus who was a new nomination elected to the remaining vacancy.
A QSMA poster presentation entitled ‘Self-Management Integration: Collaboration is the Essential Ingredient’ was displayed at the International Congress on CDSM which took place in Melbourne in November 2008. 
QSMA hosted a one day forum in November entitled ‘Building Strong Foundations for Self-Management’.  The forum provided key stakeholders the opportunity to meet with international self-management change expert, Dr. Connie Sixter and explore four key domains throughout the day:
  • Setting up partnerships and collaborations
  • Establishing structures and staffing
  • Performance improvement
  • Sustainability and spread of change
International findings from the US and Canada were presented by Dr. Sixta and interspersed with presentations showcasing current Australian initiatives across a broad range of self-management interventions.  As an outcome of the forum, QSMA will use the key themes emerging from stakeholder discussions to identify short, medium and long term goals and inform QSMA’s advocacy role and future activity focus.    
A review of the four working parties established in May 2008 identified several close synergies between the ‘Communications’ and ‘Identifying member needs’ work groups.  In order to gain efficiencies and optimise outcomes from these two work groups a motion to merge the two groups into one was proposed and agreed upon.
The ‘Policies & Procedures’ work group further progressed the governance framework for QSMA and presented this for ratification at the December MAG meeting.  The endorsed framework introduces several new levels of membership for stakeholders to select from when seeking membership with QSMA.


Chronic Disease Self-Management Support (CDSM) Network
January 2009 – June 2009
Earlier this year, GPQ assigned funding from the ABHI Chronic Disease Self-Management Support Network Project and the Nursing in General Practice (NiGP) program for divisions to support training and education of health care professionals (GPs, practice nurses, allied health professionals) in chronic disease self-management. A ‘Request for Funding Proposal’ process was undertaken with applications reviewed and considered against the Nursing in General Practice program and CDSM Support Network project objectives - a total of 11 divisions (2 of which have elected to work in partnership) each received funding to deliver their proposed CDSM training approach.

Approved applications were required to clearly demonstrate integration of proposed training approaches with existing initiatives.  In addition to considering a level of sustainability and a capacity building approach, training activities needed to include follow up strategies to support consolidation and implementation into practice of the CDSM skills delivered in training workshops.

Of the 11 divisions funded to provide CDSM training to GPs, practice nurses and allied health professionals, a variety of CDSM training approaches have been selected including:
  • Delivery of two day Health Coaching workshops
  • Implementation of a train the trainer model using either the Flinders model or the Stanford model for CDSM
  • Motivational Interviewing workshops
  • Application of the Patient Experience Program – this approach is based on a motivational interviewing model and is known in the UK as the ‘Co-Creating Health’ training model.
  • Several divisions have elected to deliver a combination of several approaches and provide a train the trainer model in Flinders and /or Stanford complemented by health coaching or motivational interviewing workshops
Division visits: The provision of support to divisions is a pivotal role for GPQ and given the diverse range of programs coordinated by the Chronic Disease team, a series of division visits have been undertaken across the Queensland Division Network. 

The key aims of these visits have been to:
  • discuss mutual activities;
  • facilitate program support; and
  • enhance the knowledge of other chronic disease management and prevention activities in Queensland.
The division visits have proved to be a valuable opportunity to gain and share knowledge from the vast amount of activity and innovative initiatives being undertaken to support chronic disease management and prevention throughout Queensland.
Collaboration with external agencies: The CDSM Network has been providing support to the Consumer Health Forum (CHF) and Allied Health Professionals Australia (AHPA) to assist them in their self-management project activities. The Network has met with key stakeholders in self-management such as Malcolm Battersby and Dr John Litt from Flinders University, to identify opportunities to adapt specific programs to the general practice setting. The Network has also worked closely with the Social Marketing Branch of AGDHA to support the launch of the Measure Up campaign for general practice.
The CDSM Network held a national two day meeting in Melbourne in late March. This meeting provided the network with an opportunity to discuss evaluation strategies and share program objectives. Several speakers presented on their current activities from both a local division and government perspective. The meeting also provided an opportunity for the network to learn more about the Allied Health Professions Australia (AHPA) survey that was conducted in late 2008, as well as how divisions are involved in the Consumers Health Forum (CHF) Chronic Conditions Self-Management Project.
July 2008 – December 2008
The first face to face meeting for the Chronic Disease Self-Management (CDSM) Support Network took place in Canberra on the 17th October and provided the opportunity for SBOs to present a state perspective in regard to activity currently occurring in the area of CDSM.

Highlights of this first network meeting included:

  • Representatives from AGDHA attended and provided an overview of other activities funded under ABHI to promote self-management, including the ‘Consumers Health Forum Chronic Conditions Self-Management project 2008-2010’ and the Allied Health Professions Australia ‘Shared Care in Chronic Disease Management’ project. 
  • Representatives from both these associations were also available to provide more detail in regard to specific project goals and identify areas of synergy and opportunities to work with the AGPN/SBO CDSM network in achieving outcomes.
  • Kirsty Douglas from the Australian Primary Health Care Research Institute presented an informative session, providing an overview of the existing CDSM evidence base and an update on research projects due for publication.  Kirsty also recommended looking out for the upcoming supplement of the Medical Journal of Australia which has a focus on chronic disease.
Network members attended the 2008 International Congress on Chronic Disease Self-Management.  Hosted by the AFV centre for Rheumatic Disease, the 2008 International Congress on Chronic Disease Self-Management took place in Melbourne on the 27-28th November. The international congress provided a forum to bring together researchers, consumers and health care experts to discuss their work and its implications for the people who manage their own disease, the health professionals who support them, and the policy makers and program planners who must create and re-create healthcare systems.

The congress also provided the forum to showcase local and international initiatives and research with key note presentations across a broad array of CDSM themes being delivered.

Speakers of note and some conference highlights from the two day conference are summarised in the Chronic Disease Update 22 (4 December 2008) and Update 24 (18 December 2008).
The CDSM Support Network recently attended a CDSM workshop hosted by the Australian Government Department of Health and Aging. Representatives from state and territory government jurisdictions and non-government stakeholders attended and were able to provide updates with regards to CDSM initiatives and activities underway in their local jurisdictions.

A key objective of the workshop was to provide a forum to discuss priorities and practicalities of implementing CDSM in addition to providing an opportunity to share experiences and learnings.

A large focus of the workshop also centered around gaining a sense of the national priorities in moving forward to enhance self-management.  Potential areas for further investment of funding to address current gaps in CDSM were discussed and a number of suggestions were put forward by stakeholders for consideration by the Primary and Ambulatory Care Division of AGDHA.

Resources

Title Features
Queensland framework for Self-Management 2008-2015

Queensland Framework for Self-Management 2008-2015

The framework is a component of the Queensland Strategy for Chronic Disease 2005-2015.  Its purpose is to guide the planning, development, implementation and evaluation of self-management approaches for people with, or at risk of developing chronic disease throughout Queensland.

It is envisaged that the framework will also contribute to the creation of a shared vision for self-management and the development of a common language across and within sectors.

Health Professional Training
 

Capabilities for Supporting Prevention and Chronic Condition Self-Management: A Resource for Educators of Primary Health Care Professional

Case Study

This document represents a key resource developed from the finding of two projects which aimed to a) develop a curriculum framework for self-management support education of the future workforce, and b) determine the skills required for prevention and self-management support of chronic conditions by the current primary health care workforce.

It includes:

  • Agreed definitions of chronic condition self-management (CCSM) related terms
  • A framework for delivery of self-management education to the future health professional workforce
  • Self-management support skills in the context of the Chronic Care Model
  • Identification and definition of the knowledge, attitudes and skills required by the primary health care workforce for prevention and CCSM support across the continuum of care from wellness, early detection and chronic condition management
Overview of Training Approaches used in the Australian Context
Overview of CDSM Training in Australia

This document provides a summary of the key features and practical considerations of the following training approaches to support CDSM:
  • Health Coaching
  • Motivational Interviewing
  • Stanford (Lorig) Chronic Disease Self-Management Program
  • Flinders Program
Where available, links to the evidence base for each model have been provided.
Health Coaching Australia (HCA): www.healthcoachingaustralia.com The HCA Model of health coaching provides health practitioners with a structured system of evidence-based behaviour change protocols that assist patients or clients to adhere to medical and lifestyle recommendations.

The model provides principles, techniques and guidance for health practitioners to know which techniques to use with a patient at any point in the consultation. These techniques take into account the patient’s readiness, perceived importance and confidence in making the recommended behaviour changes and aim to enhance these factors if required.

HCA conducts two-day introductory and one-day advanced workshops in health coaching for chronic condition prevention and self-management and will provide on-site workshops for staff within health organisations.
What skills do PHC professionals need to support effective self-management support - a consumer perspective   This article presents findings from research which aimed to identify the skills required by primary health care (PHC) professionals to provide effective chronic condition prevention and self-management support, according to the perceptions of a sample of Australian consumers and carers.

With the exception of health professionals specifically trained or currently working in this area, consumers and carers perceive there is a lack of understanding, competence and practice of chronic condition prevention and self-management support among PHC professionals. The PHC workforce appears not to have the full set of skills needed to meet the growing burden of chronic conditions on the health system. Recommendations include education and training that focuses on improved communication skills, knowledge of community support resources, identification of consumers’ strengths and current capacities, collaborative care with other health professionals, consumers and carers and psychosocial skills to understand the impact of chronic conditions from the person’s perspective.
Consumer Related  
The Person’s Experience of Chronic Condition
Self-Management: A Collection of Case Studies


- order form for Case Study
 A collection of case studies of Chronic Condition Self-Management written by health professionals from the person’s perspective. This collection of case studies was prepared by Dr Sharon Lawn from the Flinders Human Behaviour and Health Research Unit (FHBHRU) in collaboration with students undertaking the postgraduate program in Chronic Condition Management and Self-Management.
Patient Assessment of Chronic Illness Care (PACIC) In recognition that understanding patients’ experiences of the health system is crucial to improving chronic illness care, the MacColl Institute developed the PACIC, a self-report instrument for assessing the extent to which patients with chronic illness receive care that aligns with the Wagner Chronic Care Model. The PACIC is the only tool currently available which audits organisational systems for chronic care from the patient’s perspective.

The tool could be handed or posted to patients to complete and return to an agency, or completed as part of a consultation with a health professional. It could be used in a snapshot survey, for example, given to all clients attending a specific service which is being evaluated within a defined time period such as week. It can become part of ongoing evaluation of a new service or program. All or some questions could be added to existing patient feedback mechanisms.
Consumers Health Forum of Australia Consumers Health Forum of Australia (CHF) is the “national voice for health consumers". It provides and supports consumer representatives to more than 230 national committees with a health remit. The CHF website provides useful advice on the role of consumer representatives and skills required (including a self-assessment form).

CHF has successfully secured funding under the Australian Better Health Initiative to undertake a two year project on CCSM, which focuses on encouraging active patient self-management of chronic conditions.

The project aims to establish links between health consumer networks, health professionals, service providers and other interested groups to achieve a sustainable network-based model for consumer engagement at a local and a national level to implement chronic conditions self management initiatives. Further information about this project can be obtained from the CHF web site.
Health Issues Journal
Published by the Health Issues Centre, the Health Issues publication aims to analyse and report on the latest developments in health policy, research and practice, with particular focus on how these developments affect consumers.

Edition 97of Health Issues focuses on Chronic Illness.
Health Consumers Queensland Health Consumers Queensland (HCQ) was established to contribute to the continued development and reform of health systems and services in Queensland, by providing the Minister for Health with information and advice from a consumer (patient) perspective and by supporting and promoting consumer engagement and advocacy.

HCQ aims to strengthen the consumer perspective in health services policy, systems and service reform and improvement.

A consumer engagement resource kit is provided on the website.
Better Living with Chronic Obstructive Pulmonary Disease: A Patient Guide
This booklet has been developed for people with COPD and their families and carers and also for health professionals involved in the care of people with COPD.

The aim of this booklet is to:

  • provide useful information about how to live well with lung conditions
  • offer practical hints about what people with COPD can do to improve their well-being
  • act as a resource tool for people with COPD and health care professionals, particularly those living in regional and remote areas.

This resource is available for download free from the Australian Lung Foundation website.
PHCRIS Research Roundup: Researching Patient and Family Experience
The November 2008 issue of Research Roundup from the Primary Health Care research and Information Service discusses how the direction of our health system and the provision of health services must be shaped around the health needs of individuals, their families and communities. It presents the argument for why the health system should be responsive to individual differences, cultural diversity and preferences through choice in health care.
Chronic Care Models and Frameworks  
Chronic Care Model (Wagner)
 The Wagner Chronic Care Model is widely viewed as providing a strong evidence base with health care organisations using this model as a guide to practice change in collaborative quality improvement programs that have addressed diabetes, congestive heart failure, asthma, depression, cardiovascular disease and arthritis.
Expanded Chronic Care Model
This model integrated Wagner’s Chronic Care model with principles of prevention and health promotion, by expanding on those aspects which are outside of the health system by adding some new elements. The concepts and principles behind ’Create Supportive Environments’ and ‘Strengthen Community Action’ in this model may provide useful reference points.
Chronic Disease Self-Management Models and Frameworks  
Stanford (Lorig) Chronic Disease Self-Management Program The Chronic Disease Self-Management Program is a workshop given two and a half hours, once a week, for six weeks, in community settings such as senior centers, churches, libraries and hospitals. People with different chronic health problems attend together. Workshops are facilitated by two trained leaders, one or both of whom are non-health professionals with a chronic diseases themselves.

Arthritis Queensland conducts leader training for this program.  For more information visit their website at www.arthritis.org.au/page/Health_Professionals/Self-Management/.
Flinders Program Flinders Human Behaviour & Health Research Unit (FHBHRU) has developed a generic set of tools and processes that enables clinicians and clients to undertake a structured process that allows for assessment of self-management behaviours, collaborative identification of problems and goal setting leading to the development of individualised care plans. These care plans are important cornerstones in enhancing self-management in people with chronic conditions. The tools include the Partners in Health Scale ©, Cue and Response Interview © and Problem and Goals assessment.
Evaluation Tools: Chronic Disease Self-Management  
Health Education Impact Questionnaire The heiQ™ is an Australian-developed health education impact evaluation system. It consists of a set of eight scales. Each scale is an independent questionnaire and together they provide a comprehensive profile of the intended outcomes of health education / self-management programs.

The heiQ™ is designed to measure effectiveness of health education programs and to inform health professionals, researchers funders and policymakers on the outcomes of health education programs delivered to people with chronic diseases. The heiQ™ system provides course leaders and their affiliated institutions with valuable information about consumer satisfaction, service delivery quality, and effects of quality improvement activities.
Tools for Measuring Change in Chronic Disease Management in Primary Care This publication from the Primary Health Care Research and Information Service (PCHRIS)  focuses on tools which primary care organisations, Divisions of General Practice and researchers can use for measuring systems and processes relevant to chronic disease management.  The use of common validated tools can assist organisations to monitor progress, and demonstrate changes.

This can add to the evidence base about ways to improve organisational capacity to deliver quality care for patients and populations with chronic disease.
Health Literacy  
Health Literacy - A new concept for general practice? This article aims to describe the concept of health literacy, its importance and its applications in the general practice setting.
Health Literacy - Australian Social Trends, 2006 This article reports on data from the 2006 Adult Literacy and Life Skills Survey (ALLS) which provides information on the knowledge skills of 15-74 year olds in a number of literacy domains including health literacy.
The Newest Vital Sign: A New Health Literacy Assessment Tool for Health Care Providers The Newest Vital Sign is a screening tool that identifies patients at risk for low health literacy. The tool can be administered in a clinical setting in just three minutes. The test result provides information about the patient that will allow providers to appropriately adapt their communication practices in an effort to achieve better health outcomes.
Ask Me 3 A health communication program developed by the Partnership for Clear Health Communication at the National Patient Safety Foundation. This website provides a range of resources to support improved communication between consumers and health care providers.
Integrating Chronic Disease Self-Management  
Nurse Led Clinics  Developed by the Melbourne East Division of General Practice (formerly Whitehorse Division) this resource explores the evidence about nurse led chronic disease clinics and provides detailed information about what is involved and the pros and cons.

It includes case study examples of two different business models and sets out the financial incentives and funding issues implicated.
Navigating Self-Management Navigating Self-Management provides a practical guide to implementation of self management and includes a road map to guide organisations through the steps involved.  This resource includes an introduction to the chronic care model, describes how to change clinical practice, assists development of evaluation plan to assess outcomes of the SM service.

Due to the nature of funding for general practice, a specific guide for the general practice setting is included and demonstrates that SM practices can be viable and beneficial alternatives to current practice.
RE-AIM Framework RE-AIM is an acronym that consists of five elements, or dimensions, that relate to health behaviour interventions. It provides public health and community settings with a systematic way to approach health behaviour promotion planning, design, and evaluation.
Eyre Peninsula Division of General Practice:
Incorporating self-management support into General Practice
The guides provide:
  • background information on self-management and self-management support
  • the strategies and tools of self-management support
  • a series of case studies that illustrate the range of self-management support strategies and models that evolved on Eyre Peninsula over the last decade
  • the general learnings and models that emerged from the case studies
GP Partners Adelaide: Chronic Disease Management Resource Manual This resource has been built upon an existing body of knowledge and the tools and resources that have been developed by various Divisions of General Practice, Australian Government departments and other organisations.
Royal Australian College of General Practice Tools
Download Tools:

Chronic Conditions Self-Management Guidelines:
Desktop Guide for General Practitioners


Chronic Condition Self-Management Guidelines:
Summary for General Practitioners


Chronic Condition Self-Management Guidelines:
Summary for Nurses and Allied Health Professionals


Chronic Conditions Self Management Guidelines:
Desktop Guide for Nurses and Allied Health Professionals

Developed by the RACGP, the purpose of these guidelines is to assist GPs, practice nurses and allied health professionals in facilitating self-management in patients with a chronic condition by providing a framework for effective interactions and management strategies.
Teamwork for Chronic Disease Care: Case Studies from General Practice Compiled by the Centre for General Practice Integration Studies (UNSW), this set of case studies looks at the way general practices are working as teams and reorganising systems to manage the growing demand of chronic disease while providing high quality systematic care.

The case studies provide examples of how teamwork is managed in different types of practices and looks at strategies such as more effective use of non GP providers of care (practice nurses and practice managers) and more intensive follow-up and up to date registries that provide reminders and feedback.

Financial viability and developing strategies to make the best use of the Medicare item numbers is also discussed.
Related Websites  
Queensland Self-Management Alliance Queensland's peak body for self-management.  The Queensland Self-Management Alliance is a coalition of organisations committed to the promotion and support of self-management.
Oxford Health Alliance The Oxford Health Alliance is about preventing and reducing the global impact of chronic disease. It stands for innovative action with diverse stakeholders around three risk factors – tobacco use, physical inactivity and poor diet.
Health Issues Centre Health Issues Centre is an independent, not-for-profit, non government organisation that began in 1985 to promote equity and consumer perspectives in the Australian health system. There mission is to improve the health outcomes for Australians, especially those who are disadvantaged.
The Picker Institute Europe The Picker Institute Europe specialise in measuring patients' experiences of healthcare and using this information to improve the provision of healthcare. It works with patients, professionals and policy makers to promote understanding of the patient's perspective at all levels of healthcare policy and practice. They undertake research, development and policy activities which aim to “make patients' views count".

Some of the resources available from the Picker Institute include:
  • A practical toolkit for gathering, understanding and using patient feedback to bring about improvements to healthcare services, “based on what patients say is important, and what healthcare staff tell us works”
  • A Good Practice database of practical examples that have improved the patient experience
  • Fact sheets on a range of useful topics
Centre for Culture, Ethnicity and Health Centre for Culture, Ethnicity and Health provides training and a range of free resources about Consumer Participation and Culturally and Linguistically Diverse (CALD) Communities.
Chronic Illness Alliance
The Chronic Illness Alliance is a national alliance representing over 50 consumer and advocacy groups on matters of common concern. They have considerable experience in consumer consultation and provide a consultancy service to undertake consultation exercises on behalf of organisations.
The Diabetes Initiative The Diabetes Initiative is a national program of the Robert Wood Johnson Foundation. It focuses on Advancing Diabetes Self Management and Building Community Supports for Diabetes Care in real world clinic and community settings of diverse populations.

The Diabetes Initiative have adapted and developed materials useful to project implementation, training, education and assessment activities. These are available on their Web site for others to use or adapt in their own organizations. Resources include assessment materials, forms and instruments; patient education materials; and program management and implementation materials.
Co Creating Health An initiative of The Health Foundation (United Kingdom), Co-creating Health is a self-management scheme that aims to transform healthcare for people with long-term conditions.

Co-creating Health supports ambitious healthcare organisations from across the UK to create new models of healthcare that embed self-management within mainstream health services and provide responsive, effective services for people with long-term conditions.
National Evaluation of the Sharing Health Care Initiative Demonstration Projects 2005

Download Report: National Evaluation Report - Executive Summary PDF version (PDF473KB)
The SHCI’s evaluation of CCSM in the Australian context aims to provide a road map of how such models can be implemented more broadly in Australia. Eight demonstration projects were established (one in each State and Territory).

The executive summary document presents the main findings of the National Evaluation of the Sharing Health Care Initiative eight demonstration projects, in terms of clients, carers, community, health service providers and the health system. It also gives some recommendations for future implementation of self-management in Australia.

Also see: Implementing Chronic Disease Self-Management: Lessons from Australian Demonstration Projects (PDF 174KB)
Expert Patients Program (United Kingdom) The Expert Patients Program provides self-management courses for people living with any long-term health conditions(s), through the NHS and other organisations interested in running self-management courses.
The program was created to enable people to have greater access to free courses, designed to support them in improving the day to day management of their condition.
The Heart Foundation The Heart Foundation recognises the vital role that general practice plays in the prevention, diagnosis and ongoing management of cardiovascular disease. Their website house a number of resources and tools to support general practice to improve outcomes for those with, or at risk of, cardiovascular disease by:
  • establishing practice systems for coronary heart disease (including registers and recall mechanisms)
  • facilitating lifestyle risk factor modification for all of these patients
  • treating to target for biomedical risk factors
  • diagnosing chronic heart failure early and titrating ACE inhibitor and beta-blocker therapy to the maximal dose (or as close to maximal dose as tolerated).
Kidney Health Australia The focus of Kidney Health Australia is to improve kidney health outcomes leading to substantial improvements to the quality of life for people with kidney and urinary tract diseases and their families and carers, whilst also developing initiatives that reduce the incidence of kidney disease in the Australian community.

The Kidney health Australia web site provides links to a number of tools and resources for health professionals and consumers.
WISE: Whole System Informing
Self Management Engagement
The WISE approach has been developed to improve self care support by considering:
  • Patients'' self care needs, experience and knowledge to the management of their condition - Level 1
  • Engaging and involving health professionals - Level 2
  • The fit with services and access arrangements in health care systems - Level 3
Centre for Primary Health Care and Equity (University of New South Wales) The Centre for Primary Health Care and Equity (CPHCE) at the University of New South Wales has been undertaking targeted research exploring the organisation and capacity required to improve the quality of care in general practice for chronic conditions. Current research includes studies investigating teamwork within primary care services (teamwork study) and linkages between primary care services and other services (Team-link study).  There have been a number of tools and resources developed to support these two studies which have run in parallel – these resources include tools to establish disease registers and recall and reminder systems and have been made freely available on the CPHCE website and can be accessed at the following web link:
http://notes.med.unsw.edu.au/cphceweb.nsf/page/Other+Resources

To find out more information about the teamwork and team-link studies, visit the links provided below:

Articles of Interest  
Medical Journal of Australia Supplement: Optimising care for people with chronic disease

Download articles: click here
The collection of articles provided in tis supplement focuses principally on issues in Australian health care and makes the case for a need to ensure adequate resources and systems to support those with chronic conditions.
Chronic Disease Management in Primary Care (PDF 169KB) This article reviews the effectiveness of chronic disease management interventions for physical health problems in primary care setting, and aims to identify policy options for implementing successful interventions in Australian primary care.
Implementing Chronic Disease Self-Management: Lessons from Australian Demonstration Projects (PDF 174KB) The evaluation of the Australian Shared Health Care Initiative provided the opportunity to compare the quality of implementation of four established models for facilitating chronic disease self-management delivered across a wide variety of settings. This article highlights aspects of participant recruitment, program design, organisational structure and service networks that improved the reach, delivery and impact of different approaches.
Telephone Counselling for Physical Activity & Diet in Primary Care Patients (PDF 496KB) The study targeted a challenging primary care patient sample and, using a telephone-delivered intervention, demonstrated modest improvements in diet and in physical activity. Results suggest that telephone counselling is a feasible means of delivering lifestyle intervention to primary care patients with chronic conditions—patients whose need for ongoing support for lifestyle change is often beyond the capacity of primary healthcare practitioners.
Chronic Disease Management in Primary Care: From Evidence to Policy (PDF 169KB) This article reviews the effectiveness of chronic disease management interventions for physical health problems in the primary care setting, and identifies policy options for implementing successful interventions in Australian primary care.
Patient Focused Interventions: A Review of the Evidence (PDF 686KB) This review forms part of the UK’s Health Foundation’s programme to build and make public the knowledge base for quality and performance improvement.  It provides an overview of the research evidence on the effectiveness of patient-focused interventions.

Patient-focused interventions are generally aimed at one or more of the following seven quality improvement goals:
Events  
Chronic Disease Self-Management Forum: Improving Care in Queensland

Date: 15-16 June 2009
General Practice Queensland (GPQ) in collaboration with the Queensland Self-Management Alliance (QSMA) hosted the ‘Chronic Disease Self-Management Forum: Improving Care in Queensland’ at Brisbane City Hall on Monday 15 to Tuesday 16 June 2009.

The forum was well attended by delegates representing a broad cross section of the primary heath care sector including: divisions of general practice; community health agencies; primary health care researchers, and consumer health organisations.

The forum program brought together researchers and consumer and health care experts to discuss their work and it’s implications for health care professionals who support people to manage their own condition, and the program planners who support health care system re design.

Speakers included Dr Tony Lembke, clinical advisor to the Australian Primary Care Collaboratives program. Dr Lembke provided an entertaining and inspiring look at the experience and benefits of embedding CDSM practice in primary care and particularly, General Practice settings. Professor Robert Bush – Director of Healthy Communities Research Centre at the University of Queensland and currently appointed to the Queensland Health Promotion Council - addressed the concept and history of health literacy and the practical role it plays in effective CDSM implementation.

The program provided an overview of some of the chronic disease self-management training opportunities available and explored mechanisms for integrating self-management approaches into the provision of health care services. Presentations on health coaching, motivational interviewing, Stanford model and Flinders model enabled participants to compare the relative applications and benefits of each approach.

Interactive workshops were scheduled on both days of the forum, providing an opportunity for delegates to further explore the practical and change management considerations essential to integrating CDSM successfully in their local services and communities.
Presentations

  • Day One - Monday 15 June 2009
Presentations

  • Day Two - Tuesday 16 June 2009
  • Asthma Action Plans (PDF 168KB)
    - Hong Do / Tanya Raneri, Asthma Foundation of Queensland and The Ethnic Communities Council of Queensland
  • Health Literacy (PDF 404KB)
    - Robert Bush, Healthy Communities Research Centre, The University of Queensland

Further Information

Please contact:

Phillipa Grant
Senior Program Leader

Email   pgrant@gpqld.com.au

Phone (07) 3105 8300




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